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Tucson community supports 'Rare Disease Day' in free community resource event

Posted at 10:49 AM, Feb 29, 2020
and last updated 2020-02-29 12:49:26-05

TUCSON, Ariz. — The Children's Museum Tucson is holding a free community resource event to support people for 'Rare Disease Day' Saturday.

The event is from 10 a.m. to 2 p.m. and open to the community. Admission is free all day.

This is the first year Tucson is celebrating the day. Rare Disease Day started in Europe in 2008 and is celebrated globally on the last day in February.

Rare Disease Day Tucson is a project developed by Aron Schmidt and Amelia Decker, parents of a child with a rare disease. Their son was diagnosed with MECP2 Duplication Syndrome in 2018.

"Rare Disease Day Tucson will build community and support for the 1 in 20 local community members affected by a rare disease in Tucson," Aron Schmidt said.

The event is a partnership of rare disease groups, medical providers, families, and the Tucson community to help bring awareness to those affected in Southern Arizona.

For more information about rare disease day, click here.